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Be your own advocate: Get the information you need

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When it comes to helping manage their own disease and acting as their own advocate, patients should seek out resources both through their physicians and reliable online websites. When it comes to helping manage their own disease and acting as their own advocate, patients should seek out resources both through their physicians and reliable online websites.
  • About Home Health Corporation of AmericaAbout Home Health Corporation of AmericaMore>>

  • Who Are We?

    Who Are We?

    Home Health Corporation of America ("HHCA") began over 25 years ago in Broomall, Pennsylvania, and since that time the company has grown to include 21 branch offices in Pennsylvania, Delaware, Maryland and Florida.More
    Home Health Corporation of America ("HHCA") began over 25 years ago in Broomall, Pennsylvania, as a single home health agency known as Pennsylvania Home Health Services. Since that time, the company has grown to include 21 branch offices in Pennsylvania, Delaware, Maryland and Florida.More
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    Serving Our Communities

    We are committed to providing the best home health care to its patients by clinicians who excel in their field. In the provision of home health care, we are dedicated to maintaining the highest standards of quality. More
    Home Health Corporation of America is committed to providing the best home health care to its patients by clinicians who excel in their field. In the provision of home health care, we are dedicated to maintaining the highest standards of quality. More
  • Trusted Home Health Care Professionals – Your Peace of Mind

    Trusted Home Health Care Professionals – Your Peace of Mind

    With expertise and compassion, the highly skilled professionals at HHCA provide home health care services that allow you or your loved one to remain as independent as possible. More
    Home Health Corporation of America understands the importance of maintaining the highest levels of security and comfort in your home. With expertise and compassion, the highly skilled professionals at HHCA provide home health care services that allow you or your loved one to remain as independent as possible. More
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    Cardiac Services

    In order to provide complete clinical expertise to patients with Cardiovascular Disease, HHCA clinicians are updated with the most recent information and management techniques through continuing education. More
    In order to provide complete clinical expertise to patients with Cardiovascular Disease, Home Health Corporation of America clinicians are updated with the most recent information and management techniques through ongoing in-services and continuing education. More
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    Diabetic Services

    With a clear understanding that diabetes is more difficult to manage than other chronic illnesses, our clinicians educate their patients and caregivers to help achieve balance in their lifestyles.More
    With a clear understanding that diabetes is more difficult to manage than other chronic illnesses, our clinicians educate their patients and caregivers on monitoring procedures, achieving balance in their lifestyles and utilizing various community resources.More
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    Pulmonary Services

    HHCA has assembled a team of health care professionals led by registered nurses to ensure that the needs of our Pulmonary Disease patients are met. More
    HHCA has assembled a team of health care professionals led by registered nurses to ensure that the needs of our Pulmonary Disease patients are met. Clinical personnel at HHCA enhance their field expertise by attending ongoing in-service and continuing education programs.More

Getting a diagnosis of any kind of cancer can be frightening. One of the first things many patients do is learn everything they can about their illness, including what options for disease management and treatment are available. This can be challenging if a person's cancer is considered rare, which defined by the National Institutes of Health as a cancer that affects fewer than 200,000 people.

Patients with rare cancers are more likely than those with more common cancers to say they lack access to credible and reliable information, causing them to feel alone in dealing with their disease, according to a national survey. For many like newlywed Carolina Williams, getting the right diagnosis and information about her GIST, a rare and life-threatening cancer, was important to both her and her family.

One day, about a year into her marriage, Carolina Williams became extremely bloated and experienced terrible stomach pains which came on suddenly. Her husband knew something was seriously wrong when he found her unconscious on the floor from pain. He immediately brought her to the emergency room. There a physician conducted a CAT scan which revealed a large mass in her stomach that was diagnosed as a benign cyst. After four days of medical procedures to drain the cyst, a 7-pound solid tumor was removed and tested for cancer.

"Once my doctor removed the tumor, I wanted to make sure that the hospital did the proper tests to check if the mass was cancerous," says Carolina Williams. "I wasn't going to leave it up to chance so I requested that an oncologist perform the tests. I am glad that I pushed for this, because I was soon diagnosed with a gastrointestinal stromal tumor, or GIST, which is considered a rare form of cancer. I was then able to get the information I needed to help understand my disease."

When it comes to helping manage their own disease and acting as their own advocate, patients should seek out resources both through their physicians and reliable online websites. For some rare cancers, like GIST, there are a number of online resources, including www.GISTTheFactsInfo.com, an educational site for GIST patients and their families.

"It is so important for people with cancer, especially those with a rare cancer like me, to act as their own advocate when it comes to getting the right diagnosis, disease information and ultimately the right disease management plan," says Carolina Williams. "Working with my doctor and learning more about my disease has helped me focus on the other important things in my life, including enjoying time with my husband and taking care of my son. They mean the world to me."

About Gastrointestinal Stromal Tumors (GIST)
GIST is a rare, life-threatening cancer of the gastrointestinal (GI) tract. Most cases of GIST develop in the stomach or small bowel. They often do not cause any specific symptoms, making it difficult to diagnose and to treat. The exact number of people diagnosed with GIST each year is not known. In the U.S. alone, the incidence of GIST is estimated to be up to 6,000 new cases each year.

Provided by www.GISTTheFactsInfo.com.

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