"Rylie's Law Extension" Bill Voted Out of Del. Senate Committee - WBOC-TV 16, Delmarvas News Leader, FOX 21 -

"Rylie's Law Extension" Bill Voted Out of Del. Senate Committee

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Every day Rylie needs to leave school property in order to take here medicine (Source: WBOC) Every day Rylie needs to leave school property in order to take here medicine (Source: WBOC)

REHOBOTH BEACH, Del. - Senate Bill 181, better known as the "Rylie's Law Extension" Bill was voted out of the Delaware Senate Health and Social Services Committee on Wednesday by a unanimous vote, opening up the door for a vote on Thursday. The bill's sponsor, Sen. Ernie Lopez, said the change would allow children to get easier access to their medicine, without having to leave school grounds to get it. 

This new bill follows the passing of "Rylie's law" last summer, which allowed children to use these marijuana-based medicines, in order to deal with conditions like seizures. The bill was named after Rylie Maedler, a 10-year-old from Rehoboth Beach, who has spent most of her life dealing with seizures. Rylie's condition has improved greatly since she started using the CBD oils, according to her mother. 

Rylie told WBOC that she currently needs to leave school property in order to get her medicine. 

"I have to walk all the way to the car," she said. "And when I get back, I'm really confused. Because I haven't been there for like half an hour. And sometimes I miss out on some stuff."

The bill would allow a student to take the medicine in the school, so long as a caregiver is present. Rylie's mother Janie said that the change would make a big difference. 

"I won't be worried about the weather," she said. "I mean, we've walked through thunderstorms. We've walked through tropical storms. We've walked through freezing rain, snow, ice."

Maedler told WBOC that her daughter often feels like an outcast because she has to leave school property. Rylie said it would be a lot easier if she could go to the nurse's office instead. 

"I would be really happy," she said. "And I would be happy that I wouldn't have to miss class-time. And I wouldn't miss out on games and stuff. And I'd feel a little more normal than I do right now."

The bill has received opposition from the Medical Society of Delaware, due to an amendment attached to the bill. That amendment said that the medicine can only be administered by a caregiver, and not a nurse. The society told WBOC that these nurses should be allowed to give the medicine to the students.

"The Committee believes this amendment," said External Affairs Officer Mark Thompson, "Though well-intentioned, creates unintended consequences and believes that the school nurses, based upon their education and training are the most appropriately qualified to administer this treatment during the school day." 

Thompson also said that the amendment would put an unfair burden on parents, who would need to come to the school. 

"Given the possible recommended frequency of dosing during the school day," he said, "For the treatment to be effective and for the child to receive the proper benefits of this treatment, it may not be practical for parents to be the only ones authorized to administer this necessary treatment during school hours."  

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